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Monday, October 3, 2011

Life Has Made Me Behind

I am so behind on this. I have a post I want to write for my sister, Chrissy's birthday. I realized I wasn't mentioning names back in May so I never did one for my sister, LeeAnna for her birthday. I had a lovely dinner with my uncle that I wanted to write about. I had an update on the show Sister Wives that now needs to be updated again because the new one was on last night. All of this came to a screeching halt when Nico, a few hours after his football game started yelling frantically that he couldn't breathe. He was doing his treatment and it was making him cough to the point of almost throwing up. He got scared. I got scared and off we went to the ER.

Let me back up and tell you what led to that moment. Around 6:00, he came to me and said I think I need my inhaler. I'm having a tough time. He took it and seemed better. Leo went to basketball and I went to the store. When I got home, he was really crabby and said that he couldn't go to school because he couldn't breathe. Nico hates missing school (because of what a pain it is to make up the work) so I knew he was feeling bad. My plan was to give him a second treatment of Pulmozyme to open up his airways and then the antibiotic nebulizer (the one that we all love b/c it is fast and works well) even though he is on an "off" month of that. He was doing the vest as well even though the cough was a dry one. We never made it to that because while doing the Pulmozyme, he got worse and couldn't take any air in. It was a good thing that Leo was at basketball because if he was home, he would have given me a hard time about taking him. I called a friend whose son has asthma (and who didn't just get back into town from a weekend away) and after telling her what was going on, she came right over so I could take him. I really hate going to the ER. Everything takes so long. They whisked him into a room after his pulse ox was 94 (what bugs me is that they hear cystic fibrosis and things to them seem normal but none of what was going on with him was normal and I know I sounded like a broken record trying to get them to listen to me) and after hearing him struggle, said they would be right in with a breathing treatment. After waiting for what seemed like forever, the respiratory therapist came in and gave him one. I really liked our nurse. She didn't make me feel like I should be used to this having a kid with a chronic respiratory issue. Bottom line was that they did an xray that came out "perfectly clear, like someone that doesn't have CF" and called the CF doctor who put him on an antibiotic and nebulizer 4xs a day. The first thing Nico said once he started feeling better was, "I need to be better for my game on Sunday against Bartlett." He is sleeping right now. After I told him I was going to let him sleep today, he said, "If I feel okay, I want to go to school after my first three classes. I can't miss some of them. I'll never get caught up." I hate that. Really, really hate that.

The scariest part is that he was absolutely fine three hours before he started struggling. It came on that fast. I'm off to call the CF doctor and hope that a drive out there isn't needed.


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